Lived Experience

  • Responding to Accessibility Requests

    Responding to Accessibility Requests

    This tweet. All of it.     A screenshot by Twitter user GHMansfield: Access and accommodation for disabled people are not a favor, gift, reward, amenity, bonus or advantage.You don’t bestow access and accommodation.You provide it to insure a level playing field after years of exclusion and discriminatory practices.It is equity not advantage.   And if we tell you something isn’t accessible, I don’t care if your feelings are hurt.   Your feelings aren’t my responsibility.   I feel like so many people have a little “but I’m a good person!” tantrum when a disabled person brings up needs that aren’t being met.   Being open and clear about our…

  • The Cost Of One To One Services

    The Cost Of One To One Services

    The Cost Of One To One Services   There’s no real way to work around this, and I want to be up front about this. One to one services are expensive. I do charge an appropriate amount for those services.   You probably have found this website through social media, and it’s you likely know I live with chronic health conditions. That means I can’t bill everyone $100 for a month of specialised advice and just “hustle” my way through. That would damage my health and be an unsustainable business model. And I plan to be here a long time!   I work asynchronously around my health. I can’t work…

  • Just A Moment…

      Image description: A photo of an entry to a mall. There is a large truck parked across all of the disabled parking bays and pedestrian crossing.   What does a lack of accessibility do? This is what happened to me one morning. This is the only entry and the only parking spots I can use if I’m buying food on my own, as it’s the only combination that is a completely flat path to the supermarket. Other entries and parks have ramps and angles and things that I can’t use on my own while pushing a trolley/carrying weight. But thanks to these people, I had to park on a…

  • Experiencing A Symptom

    Experiencing A Symptom…

    I’ve experienced {symptom} and I have been disabled by {symptom}   Are two very different things.   This is an important difference to remember when you are talking about accessibility and inclusion in the workplace. You may very well have experienced a symptom that a disabled or chronically ill employee has … but that is not the same as having been disabled by that symptom.  

  • Two Chronic Business Tips

    Two Chronic Business Tips

    There are two things that I think benefit a large majority of neurodivergent and chronic illness business owners.   One is knowing what you need to do next, so that when you have that small window of good energy, you can log on and spend your time not making decisions, but taking actions.   The second one is to know what spoons your tasks use up. That way if you can’t go by task priority, you can go by spoons. This has the benefit of you still getting to tick something off the list and feeling the warm and fuzzies about getting something done.   Going by spoons is also…